“Sickle Cell is What We Tell” – Camp Crescent 2019

In June, Kids Rock Cancer kicked off its 2019 summer camp series with the first group songwriting experience at Camp Crescent—St. Louis Children’s Hospital’s camp for 8- to 14-year-old kids living with sickle cell disease. This year, the camp took place at YMCA Trout Lodge in Petosi, Missouri. Throughout the process, a common theme emerged: educating others about what it’s like to live with the challenges of sickle cell. Campers were split into two groups, writing a powerful anthem called “Sickle Cell is What We Tell” and singing of strength and perseverance.

 

S – I – C – K – L – E  C – E – L – L

Sickle cell is how it’s spelled

S – I – C – K – L – E  C – E – L – L

Sickle cell is what we tell

 

I got changes in my temp

From hot to cold

I get a transfusion

To new from old

Our blood cells may be different

Don’t change a thing

But here at Camp Crescent

We are all the same

 

S – I – C – K – L – E  C – E – L – L

Sickle cell is how it’s spelled

S – I – C – K – L – E  C – E – L – L

Sickle cell is what we tell

 

We’ve got pain unexpected

That comes and goes

It hurts so bad

From my head to toes

Let me tell ya something

That you might not know

We are sickle cell fighters

And that’s how it goes

 

S – I – C – K – L – E  C – E – L – L

Sickle cell is how it’s spelled

S – I – C – K – L – E  C – E – L – L

Sickle cell is what we tell